April is Autism Acceptance Month

Jordan’s image is part of an exhibition currently at the Museum of Work and Culture in Providence, RI celebrating Autism Awareness Month. The exhibition is a collaboration of Rick Guidotti, Positive Exposure and PRISMA (Precision Medicine in Autism) group. The collaboration began as a multidisciplinary effort at Bradley Hospital and Brown University and has since expanded to the University of Alberta in Canada, bringing together genetic counselors, child, adolescent, and adult psychiatrists, and other clinicians and researchers, under the direction of Dr. Daniel Moreno De Luca.

The PRISMA group works closely with individuals living with a diagnosis of autism or neurodevelopmental conditions who visit the clinic in the context of mental health needs, often helping to identify an underlying genetic diagnosis.

Photo Credit: Rick Guidotti, Positive Exposure, in Partnership with The Foundation for Angelman Syndrome Therapeutics. The Foundation for Angelman Syndrome Therapeutics (FAST) is the leading patient advocacy organization working to cure Angelman syndrome. As the largest nongovernmental funder of Angelman syndrome research in the world, their goal is to drive forward transformative research and development programs as quickly as possible for those living with Angelman syndrome — regardless of age or genotype.

Pictured: Quincy, "Quincy lives in New York City with her parents and 2 sisters, Kai and Piper. She has a giggle that lights up a room and loves fashion, swimming, boogie boarding and bubbles!"

March Feature

Unheard Voices: Shedding Light on the Overlooked Dental Care Challenges of I/DD Populations

By Sean G. Boynes, DMD, MS, Tina Saw, DDS, Jeremy Norden-Paul, MEd, Vanessa Rastovic, JD

Navigating the intricate landscape of oral health care for individuals living with intellectual and developmental disabilities (IDD) reveals a narrative that is rich with the formidable challenges faced by this community—enduring protracted wait times, meeting discrimination, confronting restricted access, and contending with an unsettling reliance on sedation. The National Council on Disability (NCD) has starkly declared that achieving optimal health for the disabled population remains an elusive pursuit within a health system that has persistently failed to foster inclusivity over decades.1-2 Understandably, individuals living with disabilities may perceive the U.S. healthcare system as a potential source of harm.

In the silent corridors of healthcare access, individuals with IDD often find themselves trapped in a cycle of overlooked oral health struggles. As we delve into the complexities of this issue, it becomes increasingly clear that the barriers to dental care access for IDD populations are not isolated but deeply intertwined with broader systemic challenges. Many individuals with IDD are situated within or near poverty due to systemic barriers, amplifying the hurdles they face in accessing both oral and medical health care. This interconnected web of social determinants of health underscores the urgent need for…

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SPECIAL THANKS TO

Rick Guidotti and Positive Exposure
for use of their photographs in HELEN and HelenJournal.org.