Translating Research Info Practice
Families
An article published in Volume 64, Issue 5 of Intellectual and Developmental Disabilities by authors affiliated with the University of Botswana, The British University of Dubai, University of Melbourne, and the Technical & Vocational Training Institution reveals that Batswana parents of children with IDD were divided on inclusive classrooms versus special units, with their preferences shaped largely by their child’s experiences and their confidence in teachers’ expertise. (Free for AAIDD Members. For non-members, the abstract is free of cost, full text is available with a fee.)
An article published in Volume 64, Issue 5 of Intellectual and Developmental Disabilities by authors affiliated with Westen Norway University of Applied Sciences and Helse Bergen finds that relatives of young adults with mild intellectual disability recognize both a need for and benefit from psychoeducational courses during the transition to more independent living. (Free for AAIDD Members. For non-members, the abstract is free of cost, full text is available with a fee.)
An article published in Volume 70, Issue 10 of the Journal of Intellectual Disability Research by authors affiliated with Cardiff University and the University of Cambridge reveals that mothers of children with rare genetic conditions in the UK and Ireland found securing educational support to be lengthy and stressful, with negative effects on their mental health and relationships with wider family members. (Full text is available free of cost.)
Caregivers
Post-COVID-19 Reflections of Family Caregivers and Individuals With Disabilities in Northern Arizona
An article published in Volume 14, Issue 3 of Inclusion by authors affiliated with Northern Arizona University and the University of New Mexico reports that the COVID-19 pandemic heightened preexisting barriers to accessing services and supports for individuals with disabilities and their family caregivers in rural northern Arizona. (Free for AAIDD Members. For non-members, the abstract is free of cost, full text is available with a fee.)
An article published in Volume 5, Issue 2 of the Developmental Disabilities Network Journal by authors affiliated with The Pennsylvania State University reports caregivers of children with Down syndrome experienced pressure and dismissive treatment from healthcare providers during pregnancy and birth, with Caregivers of Color facing additional barriers to having their concerns and autonomy respected. (Full text is available free of cost.)
An article published in Volume 23, Issue 4 of the Journal of Policy and Practice in Intellectual Disabilities by authors affiliated with the National Taiwan Normal University, Sungkyunkwan University, and Vanderbilt University finds that siblings’ involvement in caregiving for adults with IDD was sporadic, and future planning was limited by a lack of information, with siblings, parents, and adults with IDD holding different perspectives on caregiving responsibilities and motivations. (Abstract is free of cost. Full text is available with a fee.)
Assessment Tools
An article published in Volume 131, Issue 5 of the American Journal on Intellectual and Developmental Disabilities by authors affiliated with the University of California, Northwestern University Feinberg School of Medicine, Hofstra University, Regis University, and the National Institutes of Health reports changes in scores on the NIH Toolbox Cognition Battery’s Crystallized Cognition Composite were linked to improvements in broader verbal skills among children and young adults with IDD. (Free for AAIDD Members. For non-members, the abstract is free of cost, full text is available with a fee.)
An article published in Volume 131, Issue 5 of the American Journal on Intellectual and Developmental Disabilities by authors affiliated with the Nationwide Children’s Hospital, Kennedy Krieger Institute, DEEP, The Kids Research Institute, Boston Children’s Hospital, University of Maryland, and Northwestern Feinberg School of Medicine finds the Developmental Profile, Fourth Edition (DP-4), may be a valid measure of neurodevelopment for individuals with PIMD and/or DEE in clinical care and trials, but further research is needed to determine its ability to measure meaningful change. (Free for AAIDD Members. For non-members, the abstract is free of cost, full text is available with a fee.)
An article published in Volume 5, Issue 3 of Inclusive Practices by authors affiliated with Boise State University provides school-based teams with practical tools and recommendations for using assessment and data-based decision making to help ensure students with extensive support needs are included in and benefit from positive behavioral interventions and supports (PBIS). (Full text is available free of cost.)