Cri du Chat Syndrome
May is Cri du Chat Awareness Month
Summary: May is Cri du Chat Awareness Month, a time to raise understanding of this rare genetic condition and the families affected by it. The article highlights the Cri du Chat Research Foundation and its work to advance research, support families, and create hope for children living with 5p- syndrome.
Liam gives his dad, JC Leston, affection. (Photo by Rick Guidotti of Positive Exposure)
Each year in the United States, approximately 50 to 60 children are born with Cri Du Chat Syndrome, also known as Cat Cry Syndrome or 5p Minus Syndrome. Cri du Chat syndrome gets its name from the distinctive high-pitched, cat-like cry many affected infants have at birth. Other early signs can include low birth weight, poor muscle tone, a small head size, and unique facial features.
Historically, families faced limited options and little hope. Today, advances in genetic science offer new possibilities, but progress depends on collaboration, funding, and community involvement.
Cri du Chat Research Foundation (CDCRF)
In 2014, Megan and JC Leston received life-changing news: their son Liam (right) had been diagnosed with Cri du Chat syndrome, a rare genetic disorder with a daunting prognosis. Determined to create hope and a better future-not just for their child, but for families everywhere-they founded the Cri du Chat Research Foundation (CDCRF).
What began as a personal journey quickly became a movement. CDCRF is a volunteer-powered nonprofit dedicated to advancing science and supporting families. The CDCRF focuses on funding translational research, building expert networks, and accelerating the development of real treatments for 5p- syndrome. Historically, families faced limited options and little hope. Today, advances in genetic science offer new possibilities, but progress depends on collaboration, funding, and community involvement.
CDCRF 9th Annual Charity Golf Outing
Tuesday, May 12, 2026
9:30 AM - 6:30 PM
Dyker Beach Golf Course
Brooklyn, NY
Their signature golf tournament at Dyker Beach Golf Course brings together golfers for a full day supporting Cri Du Chat research. The event features morning brunch, tournament play, raffle, silent auction, and an evening cocktail ceremony with awards. With sponsorship levels from $250 to $10,000, this premier fundraising event demonstrates strong community support while funding vital medical research through an enjoyable day on the course.