July is

Disability Pride Month

Photos by Rick Guidotti for Positive Exposure. Pictured: Brecken Kinney

Brecken Kinney represents a new generation of fierce advocates for Parent Project Muscular Dystrophy (PPMD) fighting for their lives and fighting to end Duchenne.

Brecken, a rising fifth grader from Mahtomedi, MN, loves studying geography and spending time with the family’s dog and new kittens. As an avid sports fan, he also loves watching football (go, Buckeyes!) and playing golf and soccer.

Thanks to Brecken’s participation in a gene therapy clinical trial for Duchenne muscular dystrophy, a condition he’s lived with since birth, he is still able to play those sports with gusto. That’s why he is also committed to advocating with his mother, Marit Sivertson, to build awareness for new treatment approaches for the neuromuscular condition. They recently traveled together to Washington, DC with Parent Project Muscular Dystrophy

Parent Project Muscular Dystrophy (PPMD) demands optimal care standards and ensures every family has access to expert healthcare providers, cutting edge treatments, and a community of support.

Everything PPMD has done since their founding in 1994—helps those with Duchenne live longer, stronger lives. PPMD will not rest until they end Duchenne for every single person affected by the disease.

This image is part of a Positive Exposure collaboration to create an exhibition and book celebrating 30 years of Parent Project Muscular Dystrophy in November 2024.

endduchenne.org

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