MORE FROM THE STACKS
EDITOR’S NOTE: There are literally thousands of journals published around the world that relate to the disability community. It is virtually impossible to capture even a fraction of them. HELEN receives "stacks" of journals and selectively earmarks what we feel are "must read" articles of interest for our readers. It's a HELEN perk!
McKinsey Health Institute Report: Lack of Disability Data Impedes on Healthcare Equity
A recent report from the McKinsey Health Institute and the Missing Billion Initiative highlights significant gaps in health data on disabilities, and shines a light on how these gaps present a barrier to achieving global health equity goals.
Left unaddressed, these gaps have a profound impact. 1.3 billion people – 16% of the world’s population – live with a disability and face heightened barriers to healthcare that lead to poorer health outcomes and higher mortality rates. Yet countries across income designations fail to collect usable data about disabilities. These gaps will restrict global and national leaders from developing and enacting informed policies that will address critical health challenges this large population faces.
This report is the first of a 3-part publication series with the McKinsey Health Institute through which we aim to shed light on key issues in healthcare access for people with disabilities.
Justice Department Sues Maine for Violating the Americans with Disabilities Act
The Justice Department recently sued the State of Maine for unnecessarily segregating children with behavioral health disabilities in hospitals, residential facilities and a state-operated juvenile detention facility in violation of the Americans with Disabilities Act (ADA) and the Supreme Court’s decision in Olmstead v. L.C. The department previously notified Maine of its findings of civil rights violations in a June 2022 letter to Maine. The letter identified steps that Maine should take to remedy the violations.
“The State of Maine has an obligation to protect its residents, including children with behavioral health disabilities, and such children should not be confined to facilities away from their families and community resources,” said Assistant Attorney General Kristen Clarke of the Justice Department’s Civil Rights Division. “The Civil Rights Division is committed to ensuring that people with disabilities can get the services they need to remain at home with their families and loved ones, in their communities.”
“Families across Maine must be able to access to local community-based services for their children with behavioral health disabilities.”
“Families across Maine must be able to access to local community-based services for their children with behavioral health disabilities,” said U.S. Attorney Darcie N. McElwee for the District of Maine. “The alleged violations identified by the Justice Department must be remedied so that these children and their families can obtain services in their own communities, as required by the Americans with Disabilities Act.”
The ADA and the Olmstead decision require state and local governments to ensure the services they provide for children with disabilities are available in the most integrated setting appropriate to each child’s needs. These services can include assistance with daily activities, behavior management and individual or family counseling. Community-based behavioral health services also include crisis services that can help prevent a child from being institutionalized during a mental health crisis. Absent these services, Maine children with disabilities enter emergency rooms, come into contact with law enforcement and remain in institutions when they could remain with their families if Maine provided them sufficient community-based services.
The lawsuit alleges that Maine administers its system in a way that limits behavioral health services in the community. As a result, Maine children must enter in- and out-of-state facilities, or even the state-operated juvenile detention facility, Long Creek Youth Development Center, to receive behavioral health services. Others are at serious risk of entering these facilities, as their families struggle to keep them home despite the lack of necessary services.
The Civil Rights Division’s Disability Rights Section investigated this case with assistance from the U.S. Attorney’s Office for the District of Maine.
For more information on the ADA, please call the department’s toll-free ADA Information Line at 1-800-514-0301 (TDD 800-514-0383) or visit www.ada.gov/topics/community-integration/.
For more information on the Civil Rights Division, please visit www.justice.gov/crt.